This Week's Online Healthcare News
iHealthbeat Feb,20,2013
By;+Wall Street Journal
Families Push for Better Sharing of Health Care Research Information
Parents of children with rare and debilitating diseases are urging researchers to share their patient data so children are not required to participate in so many studies, the Wall Street Journal reports.
Background
In the early stage of research, natural-history studies are used to gain better insight into how diseases progress without treatment and to track different symptoms. Because the pool of people with rare diseases is small, patients often are needed to participate in multiple studies.
In a conference call last month, Stuart and Jennifer Siedman -- who have a 16-year-old son with Sanfilippo syndrome -- told researchers that fatigue, emotions and travel challenges take a toll on participants in natural-history studies. Federal agencies -- such as NIH and FDA -- also have begun to support the idea of encouraging researchers to share patients' medical data.
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Health Data Management
The Individuals Underlying Population Health
Feb,20,2013
By:+Elizabeth Gardner
Population health starts and ends with individuals. Carol Cain, director of clinical integration for the Permanente Federation and Kaiser Permanente’s Care Management Institute plans to illustrate that point using her audience as an example.
“We’re starting to collect exercise data on every visit,” she says, referring to the millions of members that Kaiser serves. “We can tell folks who don’t have any medical conditions that, based on our data, they are likely to get a medical condition in three to five years if they don’t exercise. We can look at their needs for staying active, and then think about a care delivery program that would respond to those. If you have two jobs and two kids at home, that’s the universe you live in and we won’t get anywhere pretending that you’re going to go running.” She plans to end her session by getting the audience to analyze the individual and collective needs of the group “people who attend conferences.”
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Med City News
U.S. to operate 26 state health exchanges with little local help
Feb,19, 2013
By:+Staff
WASHINGTON, Feb 19 (Reuters) - The Obama administration said on Tuesday that it will operate federal online health insurance marketplaces in 26 of the 50 U.S. states with little or no input from local state officials.
The U.S. Department of Health and Human Services announced that a total of 24 states, including six with Republican governors, plus the District of Columbia, are on track to run their own marketplaces, known as healthcare exchanges, or to do so in partnership with the federal government.
The new tally, which follows a Feb. 15 deadline for states to request a federal partnership exchange, underscores the logistical challenge facing the administration as it moves to set up federal marketplaces less than eight months before the Oct. 1 opening of plan enrollment.
"No matter where a qualified consumer lives, he or she will have access to coverage through a marketplace," Health and Human Services Secretary Kathleen Sebelius said in a government blog post.
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Modern Healthcare
The charity offering
Despite disparity in margins, rich and poor hospitals offer similar levels of subsidized care
Feb,16,2013
By+Melanie Evans
n 2010, Memorial Medical Center, a small hospital in rural San Augustine, Texas, saw its financial losses grow along with demand from patients who could not afford to pay. The hospital's subsidies for free medical care to low-income patients swallowed 4.5% of its budget by the end of the year.
One of Oklahoma's largest hospitals spent a similar share of its fiscal 2010 budget—roughly 5%—to cover the cost of medical care for patients who were unable to pay. But St. John's Medical Center in Tulsa did so with one enviable difference: The hospital finished 2010 solidly in the black with a margin of 10.8%.
Both are among the roughly 60% of private U.S. hospitals that receive local, state and federal tax breaks in exchange for operations that benefit the community.
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